💬 First Things First (2026) There is currently no medication that cures Alzheimer's disease. I will do a seperate post on the injections. The medications doctors prescribe generally fall into two categories: 🧠 Medications that may temporarily help memory or thinking ❤️ Medications that help manage symptoms like anxiety, depression, hallucinations, agitation, sleep problems, or behavioral changes. Sometimes finding the right combination takes patience, adjustments,

Just when I thought I had learned the Four A's of Alzheimer's... Aphasia. Apraxia. Agnosia. Anosognosia. Apparently Alzheimer's said: Hold my beer. Because there are more. A LOT more.

Aphasia. Apraxia. Agnosia, Anosognsia Welcome to Alzheimer's class. Did you bring your pencil? A class none of us signed up for. No syllabus. No textbook

The answer is a little more complicated. There are treatments that may slow the progression of Alzheimer's for some people. They're exciting. They're controversial. They're expensive. They're not for everyone. And they come with real risks. If you've heard names like Leqembi or Kisunla, this post is for you.

Disability Passes & Living Life Anyway One thing I promised myself when Alzheimer's entered our life: 👉 We were not going to stop living. Slow down a little? Sure. Plan more? Absolutely. Need a bathroom every 45 minutes? Apparently. But stop living?

One of the first realities many Early Onset Alzheimer's families face is this: 👉 Somebody has to take over the finances. And if you're like us, you may not be anywhere near retirement age. You weren't planning for nursing homes, disability applications, Medicare, Medicaid, memory care, or spending your weekends digging through file cabinets looking for account statements

EOA THIS is a very early conversion with DX, make sure you understand this and have this conversation with your Spouse, Children, their Parents (if applicable) so there are no surpirses later. We did an Advanced Directive we found online that was Demenita Specific

Aphasia-🗣 What It LOOKS Like in Real Life Saying the wrong word (“spaghetti” becomes “sagani”) Pausing mid-sentence Talking around a word they can’t find Getting frustrated trying to explain something Nodding like they understand… but they don’t

One of the hardest parts of this disease for me has been watching language disappear in real time. Not memory first. Not personality first. Words. The inability to find them. The inability to organize them.

You know that moment in Top Gun when everything speeds up and one wrong move changes everything? 👉 That’s this stage. Because now the danger isn’t obvious. 👉 It’s everyday life 👉 It’s normal routines 👉 It’s small mistakes… with big consequences

There are a few moments in Alzheimer's that change everything. The diagnosis. The first time they get lost. The first time they don't recognize someone. And then... The driving. For us, it happened long before I was emotionally ready.

One of the biggest shocks after an Alzheimer's diagnosis isn't the diagnosis itself. It's realizing that life doesn't stop. The mortgage still shows up. The electric bill still shows up. Health insurance still matters. Retirement still matters

& The Confusing Maze Nobody Prepares You For Half of this process feels like paperwork, waiting, confusion, and hold music. Let’s talk about: 👉 Medicare 👉 Medicaid 👉 SSDI 👉 Income limits 👉 What is FREE 👉 What is NOT 👉 What steps to take BEFORE you need it Because eventually most Early Onset families realize: 👉 The financial side of this disease is almost as scary as the medical side. 🧠 FIRST: THE THREE BIG PROGRAMS People mix these up constantly. 💼 SSDI = Social Sec

Here’s a practical GUIDE enrollment checklist and here is your "PROMPT to use for your area to do the same" "Tell me about the GUIDE program in (your city and state) explain if your spouse has Medicare or Medicaid and their Diagnosis"

More Navigation help, what to know about Part A/B and What does Advantage do for you, vs. Guide program The current CMS GUIDE Model generally requires: ✅ Medicare Part A ✅ Medicare Part B ✅ Original (Traditional) Medicare as primary coverage

The UNOFFICAL SSDI, Medicare & Medicaid Resource Guide complied by me. What Caregivers Need to Know About Disability, Medicare, Medicaid & Long-Term Planning 💬 Disclaimer This guide combines our lived experience with publicly available government resources and AI-assisted organization/editing to help make overwhelming topics easier to understand. 🧠 FIRST: UNDERSTAND THE DIFFERENCE Many caregivers (including me early on) confuse: SSDI Medicare Medicaid They are NOT the same

🧠 Keeping the Mind “Fresh” Routine (huge) Familiar environments Repetitive physical activities Simple tasks with purpose 👉 Muscle memory is your best friend

If you’re caring for someone with Alzheimer’s or dementia… 👉 7pm can feel like entering another dimension. One minute things seem manageable. Then: The pacing starts The agitation kicks in The confusion increases The refrigerator opens 17 times The muttering begins The anxiety rises The wandering starts The repetitive questions return And you’re standing there exhausted thinking: 👉 “What just happened?”

When I Knew Something Was Still Wrong About 2 months later: Increased irritability More irrational behavior Continued cognitive issues So I pushed. 👉 We went back.

If you’ve landed here, it’s likely because something in your life has shifted. Your spouse. Your parent. Someone you love. Maybe they’ve been diagnosed with Early Onset Alzheimer’s (EOA)…or maybe you’re here because you’re seeing signs that don’t make sense—and you’re searching. First… I am truly sorry.