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🎵 “The Weekend” – EOA & The Thoughts About Companionship We Don’t Say Out Loud(SZA)


To do, or Not to Do
To do, or Not to Do

💔 THE PARTNERSHIP CHANGES LONG BEFORE THE PERSON IS GONE

That’s the reality people outside this disease don’t understand.

You may still be:

👉 Married



But no longer have:

  • Emotional intimacy

  • Intellectual connection

  • Physical affection

  • Partnership


🧠 THE LONELINESS IS HARD TO EXPLAIN

Because technically:

👉 You aren’t alone


But emotionally and intellectually?

👉 You absolutely are sometimes


💭 THE THOUGHTS START SHOWING UP

At some point many caregivers quietly begin wondering:


👉 Will I ever feel desired again?

👉 Will someone ever take care of ME again?

👉 Will I ever laugh and flirt and feel butterflies again?

👉 Am I even allowed to think about this?


And immediately after?

👉 Guilt


⚠️ LET’S BE HONEST

There are:

  • Facebook groups

  • Reddit threads

  • Apps

  • Entire communities


Focused around:

👉 Caregiver loneliness

👉 Companionship

👉 Emotional connection during caregiving

Because this is WAY more common than people admit.


💔 THIS ISN’T ALWAYS ABOUT SEX

Honestly?


Most caregivers I talk to seem to miss:

👉 Adult conversation with topics, educated debates, humor and wit

👉 Being seen

👉 Feeling emotionally safe

👉 Being cared for

👉 Being wanted

👉 Being touched affectionately


More than anything else.



🧠 THE WEIRD PLACE CAREGIVERS LIVE IN

You can:

  • Deeply love your spouse

  • Care for them faithfully

  • Stay fully committed


AND STILL:

👉 Feel emotionally starved


Those things can exist together.


💭 THE FUTURE STARTS CROSSING YOUR MIND


Maybe you don’t want:

👉 Another Husband/Wife

👉 Another marriage

👉 Another person to fully care for


But maybe…

👉 You also don’t want the rest of your life to feel emotionally empty either


And that thought alone:

👉 Can make caregivers feel incredibly guilty


💡 WHERE I AM PERSONALLY

I haven't explored that yet in a physical way, but I am dying for an emotional connection somewhere. I miss talking about my work day, funny conversations, two way banter, calling out trivia answers....


But I’ve read.

I’ve listened.

I’ve seen the conversations.

And strangely?


👉 It gives me hope

Not because I’m trying to replace anyone.


But because:


👉 My life isn’t over yet either


💛 WHAT CAREGIVERS NEED TO HEAR

Missing:

  • Intimacy

  • Touch

  • Connection

  • Companionship


Does NOT mean:

❌ You stopped loving your spouse

❌ You abandoned them emotionally


It means:👉 You are still human



🧠 THIS DISEASE CREATES “LIVING GRIEF”


And with that comes:

  • Isolation

  • Emotional deprivation

  • Identity loss


Humans are not built to:

👉 Carry all of that alone forever



⚖️ THE INTERNAL BATTLE


One side says:

👉 “How could you even think about this?”


The other says:

👉 “I don’t want to disappear too.”


And honestly?

👉 Both sides are real


💭 THE HARD TRUTH

Some caregivers stay:

  • Emotionally closed forever


Others:

  • Seek friendship

  • Companionship

  • Connection

  • Eventually love again

There is no universal right answer.


💡 WHAT MATTERS MOST

Not secrecy.

Not shame.

Not judgment.



But:

👉 Honesty with yourself

👉 Safety

👉 Respect

👉 Emotional health


🎵 Why “The Weekend”

Because this song captures that strange emotional space of:

👉 Wanting connection

👉 Wanting more

👉 Wanting something that belongs to YOU again



💭 Final Thought


You are allowed:

  • To miss intimacy

  • To miss affection

  • To wonder about your future

  • To hope for joy again someday


Even while still loving the person you’re caring for.

Those things can exist together.


💬 Disclaimer

I’m not a doctor, lawyer, therapist, or expert—just a wife trying to figure this out one day at a time. Everything shared here is based on our experience and things that have helped us along the way. Take what helps, leave what doesn’t, and always check with professionals when needed. I also use AI to help clean up my writing, organize thoughts, and pull together resources because honestly… caregiver brains are tired too. If something here helps another family feel less alone, then it’s worth sharing.




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